The mission.
Understanding what it is like living with vitiligo
Our research focused on uncovering the psychological challenges faced by individuals living with vitiligo, including the emotional toll, societal perceptions, and impacts on self-esteem. We aimed to explore their experiences with healthcare, assess the quality of support they received, and identify any gaps in treatment or assistance. Additionally, we examined the types of support that are currently available and those most valued by people with vitiligo, with the goal of making these resources more accessible and effective for their needs.
The research.
Our approach to hearing from those impacted by vitiligo
Our research involved a nationwide survey of 828 respondents and 20 in-depth interviews to understand the key factors influencing well-being in people with vitiligo, such as their vitiligo characteristics, resilience, and support access. Additionally, we segmented participants into three groups based on their experiences and perceptions, and used behavioural science models to give insights into how the vitiligo Society could better address the needs of those living with vitiligo.
The impact.
Our findings showed how vitiligo impacts mental health and self-esteem, highlighting social, environmental and psychological factors. We provided the Vitiligo Society recommendations to reduce stigma and improve support, including better social opportunities and understanding how to improve healthcare access. Helping individuals manage their vitiligo more effectively, its impacts and increase awareness and understanding in the community.
